Support
- Details
- Last Updated on 29 November 2017
Although there are few if any in-person support groups for infantile spasms, there are several online groups and resources (run by parents) that can be of great benefit to patients and caregivers. However, a word of caution: these sites are not monitored by medical professionals and some of the medical advice found on these sites is inaccurate or misleading.
- Infantile Spasms Forum (InfantileSpasms.com)
- Infantile Spasms on Facebook
- Infantile Spasms Yahoo Group
- Child Neurology Foundation: Family Support & Empowerment Program
Please feel free to submit additional websites or other resources that can be posted here.
Disclaimer:
Although efforts are made to keep this website correct and up-to-date, we urge caution in interpreting the information you find here. This is in no way a substitute for the advice and care of a pediatric neurologist. Please view the terms of use.