Although there are few if any in-person support groups for infantile spasms, there are several online groups and resources (run by parents) that can be of great benefit to patients and caregivers. However, a word of caution: these sites are not monitored by medical professionals and some of the medical advice found on these sites is inaccurate or misleading.

Please feel free to submit additional websites or other resources that can be posted here.


Although efforts are made to keep this website correct and up-to-date, we urge caution in interpreting the information you find here. This is in no way a substitute for the advice and care of a pediatric neurologist. Please view the terms of use.

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